4/30/14 It's been a while Since I last posted. Owens numbers still aren't where we want them most the time, but the adjustments his Endo made are keeping them fairly level. His mood swings still happen allot when he's high or low but I think it's better when he's low because he at least knows he feels sick and is being a jerk. We still have to do the 2am checks but I haven't been battling the lows since they changed his Lantus which means more sleep for both Owen and I. YAY! He is also finally gaining the weight, he's still considered underweight but he's getting there!
Todays been pretty good, Just waiting on our 2am check hoping it's not low :) Owen got his bracelet! Isn't it fabulous? https://www.facebook.com/KnotRightParacordDesign
A son with Type 1
Monday, March 17, 2014
Saturday, March 15, 2014
Ups and Downs
With ups and downs my adorable sweet helpful child turns into a monster. His overly helpful and kind mannerisms change and let me tell you this boy can scream for hours and hours. I honestly don't think he knew what he was crying about. I hate diabetes, Its made my son, our sleep and all of our lives unpredictable. He was doing really good checking his blood but lately he pulls his finger away before he gets a good poke which results in more pokes ... I wish he would let me do it but the only ones he never pulled away from were his night and day nurses. Silver lining his bracelet came in today :) woot! It looks fabulous! I'll post pictures tomorrow.
Thursday, March 13, 2014
Wednesday, March 12, 2014
Tuesday, March 11, 2014
Just Another Day In A New Routine / Thanks Diabetes Type 1 You're So Helpful!
So tonight hasn't been the best of nights for my husband and I. I'm grumpy, he's grumpy , we're all tired and overwhelmed. I desperately want to Scream at him to just stop talking but am taking the passive aggressive keeping my mouth shut with "that look" route . I am sharing this because some people think I am not capable of having a breakdown and that's far from the truth. This is a stressful time and I think this is fairly normal... I mean if it's not we all know I'm a little odd anyhow. I love my husband, he loves me but we are both overwhelming the crap out of each other... can I say crap? Well this is my blog and I'm going to. I called a friend upset my husband and I were arguing and She thought it was hilarious I was this upset over my husband and I not embracing while running through fields of flowers reassuring each other that everything's going to be ok.... " I love my sarcastic friends they are my fav" So to those of you having a rough night, if you're new to this it will be a stressful time for you. You and your spouse may argue about how you are going to afford the bill even if you're both in agreement you both don't know what to do. Yes we are both being childish arguing over things if said in a normal tone we would both agree with. It has to be the exhaustion. We are like two overly tired drunken toddlers with no rationalizing skills. This doesn't mean you don't love each other, tomorrows a new day, thank goodness. So If you find you and your spouse are annoying each other during this time you're not alone, I hate to break it to you but you're dare I say? Normal. Moving on to more news I have been having a hard time figuring out carbs in the recipes I currently use. My friend Katies mom Lisa was nice enough to buy us a beautiful kitchen scale that will be here Thursday. I feel that will make things allot easier on all of us. I am so happy I have these amazing people in my life wanting to jump in and help our family. Owens been keeping his blood levels in range ... there is so much more for me to learn about this disease but I'm still numb from all of this I can't help but to have moments where I am freaking out about the financial ramifications but for now the tears have stopped and we have gotten into a routine we are comfortable with. Tonight we checked the mail and this week I haven't seen a bigger smile on Owens face aside from when he got his pal Rufus. We are trying to look at the upsides, Owens middle child syndrome is all but a distant memory this week. With that being said What do you think? Owens new bracelet custom-paracord-diabetic-medical-alert pretty awesome right? I really love this boy he lights up my life <3 all my children do.
Added note the store owner of KnotRightParacord was sweet enough to send Owens bracelet as a gift! I can't wait to take pictures of it for you guys :) Opps Tme to run to do Owens 2am BG check! You may wonder why I am awake so often between 9 and 2am well lets just say I am a very sounds sleeper and when I am out, I'm out like a freaking light it just makes more sense to go to bed after his check ... for now.
Score! Resources That Have Been Helpful!
www.apidra.com has an RX assistance program it costs nothing to sign up! You can't use it if you have Federal insurance however you can check your private insurance carrier to see if they allow you to use the card to help with the copay! How fabulous is that?
http://jdrf.org JDRF is wonderful, they give out a free starting kit, for younger kids like my son they even provide a special Bear named Rufus.
http://www.diabeteswellness.net Free I.D Necklace all you have to do is pay shipping... pretty sweet if you ask me! Y
Discouraged about the price of diabetes camp? Don't say you can't afford it yet! Most of them offer financial Aid, some will cover up to 90 percent!
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